You might be surprised by the power of a blog. The MTHFR treatment with blood thinners is quite controversial. Many doctors adamantly deny that it works even though there is a great deal of evidence to support it. My opinion is that if it won't hurt, why risk not trying it? Yesterday, we got an e-mail from someone who had the an MTHFR gene mutation resulting in miscarriages. She learned of the treatment from our blog and recently had a healthy baby. I am excited for her and her family. It makes me feel really good knowing that my blog may be making a huge difference in people's lives... possibly even saving lives.
I would like to encourage each of you to post comments on this blog and to share your own experiences with us and other readers. Your experiences can and will make a difference.
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12 comments:
i am also a mother who has mthfr i miscarried at 71/2 months the first time the 2nd time i had a beautiful baby girl i took lovenox and heprin through out my pregnancy and it worked my daughter will be 1 yearold on feb 22
Your son is beautiful!! I am very happy for you and your wife. I can relate to everything that you have been through, having been there myself...it gives me courage to read your story and I thank you for sharing it with others because you are certainly making a difference :-)
hello,i came across this blog while searching for information on MTHFR. after a year of trying, i did two failed IUI's, 1 failed IVF, and 1 ZIFT IVF which resulted in a miscarriage. a few months later i miraculously got pregnant on my own, but miscarried at 10wks. three months later i conceived again, and am in the process of miscarrying again!
i just found out i have the MTHFR mutation and i am praying that the heparin + folic acid is the answer to my problem. your blog has given me such hope! thanks for sharing!
I have now had two miscarriages and just found out that I have MTHFR mutation. I have discussed with a hematologist the options of pregnancy and lovenox. They said that it was safe and heparin was not their first choice due to possible side effects that could harm the baby. We our going to try again, this time were going to try the treatment and keep our fingers crossed.
I to have had two misscarages one at 8 weeks (triplets) and the second at 10 weeks. But it has been 5 months since my last misscarage and I haven't gotten pregnant again. I got pregnant with my son and the two that I misscarried immediately. I'm just a little worried it won't happen again. I am almost 40 and don't want to wait too long.
My husband and I lost our first child June 2006 at 3 1/2 months. Our second child, a daughter, was stillborn at 6 months in June 2007. We found out that I have MTHFR (homozygous). We have been advised to do bloodthinners when we become pregnant again. We are going to give it another try starting next month. I will post again with my progress. I am praying for you all to have healthy children! Thank you for this inspiring site.
I was diagnosed with MTHFR Compound Heterozygous A1298 C776 mutations in Sept. 2006 after a miscarriage. After being on folic acid and aspirin for close to a year, we got pregnant in July 2007, went on blood thinner injections of heparin twice a day and gave birth to a beautiful baby girl on March 28, 2008.
hi. my sister has had many miscarriages and has been blessed with two perfectly healthy little boys (3yrs and 1 yr) and found out afterwards that she has MYHFR. I have a one yr old little boy and am 4 months pregnant with my second, and I got tested for MTHFR just in case...the results came back positive today so I start my shots the day after tomorrow. I am really just curious of how that works...how long do I take the shots and any other info would be great. thanks sooo much.
I was also iagnost with mthfr gene mutation after havin a stillborn in August of 07 i was 8 months and it took me a year to get pregnant so i am now almost 8 months praying everything will be ok.
I too was diagnosed with MTHFR one week prior to delivering my son. I delivered him in my 25th week of pregnancy at 1.5 pounds. Had we not been diagnosed that week both he and I would have died in childbirth due to a blood clot the size of my placenta. Thank goodness that the week prior we immediately started the Lovenox shots. He is now a healthy 25 lb 18 month old baby who is completely issue free.
After having a very difficult pregnancy and spending 3.5 months in the NICU with a very sick baby, I am fearful to try again. My doctor too has stated that with the assistance of blood thinners I should be fine. Would anyone be kind enough to share their experience with me. Were you required to stay at home on strict bedr est? Were you permitted to function normally? Thank you for your help, we would love to have a little brother or sister for our Boo!
Daron thank you for this blog and thank you for sharing your story. I miscarried at 13-14 weeks. Because it was early 2nd trimester and my age- almost 35, she ordered multiple blood tests...and found I have the MTHFR defect (compound homozygous). Your story (and the stories of the other commentors)gives me hope and gives me courage to try again! My ob/gyn prescribed 4mg/day of folate and told me to take a baby aspirin daily. Soon I am meeting with a perinatologist to discuss more and/or different treatment options.
Hi! I had a Pulmonary Embolism at age 23 which was attributed to birth control pills. I was told that when I decided to have children, I would need to go on blood thinners. When I became pregnant with my first child, my Dr ran the blood tests and found that I was positive for MTHFR and prothrombin mutations. I am happy to report that, taking heparin and folic acid, I have now had four healthy babies and am pregnant with a fifth! Be encouraged; this treatment does work!
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